DO YOU KNOW WHAT IT IS LIKE TO FEEL HUNGRY?
Today is day 2 of my juice fast. Today is also Blaise’s birthday. I am not going to lie, today was really hard. I was really hungry today. Worse than yesterday. Let’s not forget to add the massive headache and acne breakout in the mix.
Today I really understand what it is like for my son.
Today I understand what it is like to have Prader-Willi Syndrome. I know what it must be like for Blaise when everybody is eating cookies and cake, and hamburgers and fries, and he can’t have any. Or if he does have any it is a teeny tiny amount, while all the other children can eat until they are full.
Today I understand what it is like when the house is filled with smells of food and you are starving, but you can’t eat.
Today I understand what it is like to sit at the table with everybody while they eat a yummy meal, but you can’t eat.
Today I understand what it feels like to have hunger pains that don’t go away, no matter what you do.
Today I understand what it is like to be so hungry that all the rest of your body parts hurt.
There were so many times today that I wanted to eat, that I wanted to give in, but didn’t. I would not let that happen. Today was the most important day of my fast. Today was Blaise’s birthday and so today I honor him by being hungry. Not just a little hungry, but really hungry.
So now I know more than ever that we have to find a cure. I want to release my son from the prison of hunger. I want to free him from pain.
When you are hungry it is all you think about. When you are hungry the hunger pain takes up so much space in your brain. Can you imagine trying to learn in school when you are starving? Can you imagine trying to have fun and play with your friends with a hunger pain gnawing at your insides? Let me tell you, it is really hard.
I know that Blaise has grown up knowing this pain, I know that this is all he knows. For me that is not much comfort. I am dedicated to finding a cure for my son. I will do whatever it takes. I will do everything for him.
If you are reading this and you haven’t eaten dinner yet, don’t. I ask you that one small thing to honor my amazing Blaise on his birthday. Just give up this one meal to know what real hunger feels like. Go to bed hungry tonight, just this once. I promise you it will give you a whole new perspective on my son’s fight.
Through it all he always, always has time for a silly face and a good laugh with mom.
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