Tag Archives: scale

It Finds You

4 Mar

Blaise woke up promptly at 7am, “I am hungry mom, I need an apple.” Today is our day to sleep in, I was hoping for just 20 more minutes, well nope, not today. I got up and BAM. Holy, you know what, migraine city. I don’t typically get headaches, let alone migraines, up until recently. I think to myself, “I am fine. I have medicine for this, I will rest before work, this shall pass.” Six hours later, 2 pills later, a nap later, and I still think my brains are ready to come out of every possible crevice in my head. Oh did I mention today I decided to start my juice cleanse/fast/feast.

juice fast

Probably not smart because I am going out-of-town on Friday and well, let’s just say it’s about that time of the month. I went forth with reckless abandon, thinking I made it four days last time, I can definitely do four days this time. Ha! At just around 1:30 I was ready to eat my left arm for lunch. I started thinking. Listen to your body, what is it telling you, it’s telling you to eat. I had some nuts. Headache still here.


7am in my house:

Rachel: “Blaise you need to get on the scale it’s been a while.”

Blaise: “Okay Mommy”

Rachel: “Oh my god you gained 4 lbs. What the heck. I did everything the doctor said. How could this be?

hate the scale

My husband senses a major meltdown and hides under the covers. My heart starts beating. Oh my god. I hate PWS. I hate scales. I hate food. I hadn’t planned on getting on myself, having gorged on some serious Italian last night, and the night before, but of course I did anyway. I stepped on. OH MY GOD I am up another 10 lbs. Panic sets in, sweat beads are forming on my forehead, my voice deepens, every living thing in my path should run for cover. I deal with panic, I ask for help from good friends and move on with my day. Experience and release, I hope.


I am sleeping in my bed when my phone goes off. It is 1:45 headache is still raging, it’s Blaise’s teacher. Shit, do I answer? Is it important? Oh god, I want to sleep. I answer. Conversation goes as follows. “Blaise had an accident, a big one, he wet his pants big time. Oh and there are no clothes here that fit him, they are all too small, oh and by the way he needs bigger pants his butt keeps showing.” Well, after that mouth full I am fully awake. I rub my eyes, put my shoes on and head out the door. I start the car, oh I need to bring clothes, my child is naked in his class. I get to school and he is wrapped in a blanket, naked from the waist down. Conversation from phone continues: “Blaise needs BIGGER pants, his butt crack shows, he is too big for his clothes.” Yes, I get it.

Universe said to me: You wanted to deal with this today. You asked for it. You put it out there. I didn’t say how I would give it to you, but I did. So the universe presented me with this horrible and ugly situation with my son. For the non PWS  parent let me explain why such situation is ugly and horrible. Our kids gaining weight is the ultimate enemy, (the bigger PWS kids that is). After leaving the doctor in January and her saying no more weight gain, another four pounds feels like I have an elephant sitting on my chest.


I pulled up my boot straps and drove his little hiney down to the store and got new pants. Situation handled, NOT.

Said voice in my head(in one long breath): You are failing as a PWS mom, this is too much to bare. I have to monitor everything he eats, make sure he gets exercise and therapy, I have to practice reading, writing, and math at home, dole out countless medications everyday, make sure his GI tract is functioning, make sure he is breathing at night, keep him safe from food, help him dress, brush his teeth, use the bathroom properly, give his GH shot every night, drive to Atlanta and Florida for countless doctor appointments, and there is too much more to list. OH AND SHIT HE GAINED 4 LBS, like I need one more thing.

This is the voice inside my head. Sometimes I wonder how I get the courage to wake up in the morning and face another day of battles and victories, or joy and hurt. All I know to do is keep moving forward, connecting with my support system, and write.

My mom was here for 2 months when I got sick, she is an angel from heaven. Just knowing I had somebody to turn to at any point in the day was heavenly. I still have that, via phone, but I have it. PWS can make you feel so alone. I don’t feel alone today, but in the spirit of ABTTT(always be telling the truth) I am admitting that today I am overwhelmed and exhausted. If it was weight issues I wanted this morning I sure got them.

Sometimes I can do all the right things and the outcome still doesn’t fit my plan. This is that such case. I did everything the doctors told me and it still backfired. Time for plan B. I will always turn to plan b, and then c. I will do whatever it takes to get it right for Blaise. I want him to live a happy life, I want him to be healthy and fit, and move with ease. I will tackle this latest monster. I am tired and don’t know if I have the energy for monster slaying, but there is a job to do and so I go forth, with reckless abandon, because I love my son.

monster slayer

The Change Inside

27 Jul


I turn 35 in 5 months and I am better now than I ever was. After a night of no sleep I am up at 6am and ready to face the day. I am not cranky, sleepy, or even mad that I am not sleeping now. I am awake, totally awake and alive.

Today marks 8 days completely gluten-free, and Wednesday marks 6 months of being smoke free. On Saturday, August the 4th I graduate from my teacher training. I am loving life.

I woke up today and I felt great, I felt as if I was living in a new body. I am twenty pounds s overweight and totally fine with that. Why? I will tell you. I am healing my body. If I have gained weight because of quitting smoking, well than that is twenty pounds that I am glad to have. In return I have added years to my life. I am healing my insides by eliminating all the gluten from my diet and I love the lightness that I feel. All of the things that don’t serve me anymore I have said good-bye to. I am twenty pounds heavier but healthier than I was when I was in my 20’s, totally worth it.

What prompted this post today was to share the real “Change Inside” of me, and how you can have the same. I would have been completely depressed a year ago if I saw that I had gained twenty pounds. I like so many women equated my worth with how much I weighed, or really how skinny I was. I am not alone in that experience. In fact I used to obsessively get on the scale everyday, all it did was upset me. There was a time when my sister came to visit and hid my scale from me before she left. When I couldn’t find it I went into a complete panic. I called and begged her and she wouldn’t tell me where it was. I took me days to find it. Why? What did this represent? If I got on the scale and I was lighter than I had a good day, if it was heavier than it was almost definitely a bad day. When I think of that time it makes me a bit sad, I can’t even imagine that being a part of my life anymore. Of course I still care about my body, I care about my body more than I ever had, but in such a different way. I look at myself through completely different lenses. I rarely get on the scale, and when I do I see just a number, I am not effected either way. I look in the mirror and like what I see no matter what. When I look in the mirror if I am not feeling my best that day here is what I do, I find something that I do like about what I see and focus on that. I then look at myself again in the mirror and realize that I like all of what I see.

I don’t know if it is the growth I have had in teacher training or that I am getting older, but I am completely comfortable in my skin. That is the best feeling in the world.






The peace that comes with being comfortable in your own skin is immeasurable. It is life changing and yummy. I wish I had this remarkable shift when I was a younger woman, but I am happy that I have come to this place at all. There is no better time than now. I am convinced that I have been given a second lease on life and that it is just the beginning for me.

My challenge to all of you is to find this peace within yourself. I say take the challenge for one week. Here is what you do.

For 7 days I want you all to stand in front of the mirror and find something that you really like about yourself. I want you to look in the mirror and tell yourself that you are perfect. Say it even if you don’t want to, say it even if don’t feel it. Fake it until you make it. Keep doing this until it feels real for you. I promise you that you are perfect just the way you are, and you when you realize it you will be a new person.

I invite you all to have The Change Inside!


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